Psychosocial adjustment to visual loss in patients with retinitis pigmentosa

Dalbhir Jangra, Anuradha Ganesh, Robin Thackray, Latoya Austin, Alissa Ulster, Joanne Sutherland, Alex V. Levin*

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

27 Citations (Scopus)


Purpose: To investigate psychosocial adjustment to visual loss in patients with retinitis pigmentosa (RP). Design: Cross-sectional study. Methods: Thirty-three legally blind patients with RP participated in the study. Information regarding the patients' adjustment to their visual loss was obtained using the Psychological Adjustment to Illness Scale (PAIS-SR). Seven psychosocial domains were tested: health-care orientation, vocational environment, domestic environment, sexual relationships, extended family relationships, social environment, and psychological distress. These scores were compared with the psychosocial adjustment of patients with diabetes. Results: Significantly elevated scores (a high score reflecting poor adjustment) were seen in four out of seven domains. The highest relative score was seen in the health-care orientation domain (65 ± 14, p < 0.001), followed by vocational function (61 ± 11, p < 0.001), social environment (58 ± 9, p < 0.001), and extended family relationships (55 ± 9, p < 0.05). The total PAIS score was significantly elevated (58 ± 8; p < 0.001). Conclusions: Patients with RP have difficulties in adjusting to their visual loss particularly with respect to health-care orientation, vocational environment, social environment, and extended family relationships. They face more difficulties in these domains than diabetic patients in adjusting to their illness.

Original languageEnglish
Pages (from-to)25-30
Number of pages6
JournalOphthalmic Genetics
Issue number1
Publication statusPublished - Jan 2007


  • Diabetic patients
  • Psychosocial adjustment
  • Retinitis pigmentosa
  • Visual loss

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Ophthalmology
  • Genetics(clinical)


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