KAPPA?(Key Aspects of medical Practice in Patients with Haemophilia A)

Lund University runs KAPPA study to assess the cost utility of the different treatment regiments using a multinational approach and variety of patients from different economic background. Lund University will support participating centres to initiate a local registry of haemophilia patients to be used for their daily treatment practice as well as research purposes. This is a disease related registry. Patients will read and sign the informed consent to let the researchers use their anonymous information for this study. The data collection tool is internet based and a web site has been designed with secure log in and password to give to the study partners from each centre to enter information. This study is observational and no change will take place to the patients' care as a result of refusal or participation in this study. Patients' information will be entered first into a locally accessible database which will be used and reached just by the clinician and the nurse in the local haemophilia centre. The inclusion criteria for the study is being a moderate to severe haemophilia patient and signing the informed consent of the study. The exclusion criterion is patient s decision to leave the study. Study description: 1) Site-specific, non-interventional collection of retrospective and prospective patient data and annual analysis and comparison of descriptive results between centres and countries to analyse disease course and outcome of medical practices 2) Annual burden of illness and economic evaluation of different treatment strategies.