Caregiving Preparedness and Caregiver Burden in Omani Family Caregivers for Patients with Acquired Brain Injury

Objective: To explore the caregiving preparedness and burden among Omani family caregivers (FCs) of patients with acquired brain injury (ABI). Methods: A prospective observational design was used to collect data from 119 FCs and their patients at the time of discharge from the hospital and 16 weeks post-discharge during follow up-care in the neurology clinic. The questionnaire comprised the Zarit Burden Index, the Preparedness for Caregiving Scale, the SF-12 General Health Survey, and a patient symptom scale. Results: FCs were predominantly female (55.5%), and their mean age was 38.27 ± 9.11 years. Most patients had moderate to severe ABI (95.8%) due to stroke (56.3%) and trauma (30.3%). The most common patient symptoms were loss of muscle strength, speech problems, mood problems, memory loss, and change in behavior. Most FCs had a low caregiving preparedness (58%) at discharge, and 19.1% had a high level of caregiving burden at 16 weeks post-discharge. The length of time post-injury (p < 0.01), symptom severity (p < 0.01), and the FCs’ physical and mental health status (p < 0.01) were significant predictors of caregiving preparedness.  The predictors of caregiver burden were caregiver preparedness (p < 0.01), symptom severity (p < 0.01), and caregivers’ mental health (p = 0.028). Conclusion: Omani FCs of patients with ABI commence the caregiver role with inadequate preparation, and shortly a significant number suffer a high caregiving burden. Interventions focusing on the caregiver’s health and training in symptom management may enhance the outcomes of FCs and patients. Keywords: Acquired brain injury; Caregiving; Caregiving preparedness; Caregiver burden; Family caregivers; Rehabilitation; Traumatic brain injury; Oman.